Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges

Diane Nelson Bryen

doi:doi:10.11648/j.hss.s.2016040201.18

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Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges

Diane Nelson Bryen

Published in Humanities and Social Sciences (Volume 4, Issue 2-1)

Received: 25 January 2016 Accepted: 10 February 2016 Published: 13 May 2016

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Abstract

This paper traces the history of conducting research involving people with disabilities and raises serious questions about the ethics of conducting research. Ethical concerns include treatment of vulnerable populations, lack of informed consent, and benefit versus undue hardship when using people with disabilities as research participants. New technological advances, such as discussions on social media, present some new ethical concerns. Two case studies are presented that illustrate new ethical challenges. Guidelines are proposed that address the right to privacy, anonymity and confidentiality.

Published in	Humanities and Social Sciences (Volume 4, Issue 2-1) This article belongs to the Special Issue Ethical Sensitivity: A Multidisciplinary Approach
DOI	10.11648/j.hss.s.2016040201.18
Page(s)	53-59
Creative Commons	This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited.
Copyright	Copyright © The Author(s), 2016. Published by Science Publishing Group

Keywords

Research, Ethics, People with Disabilities, Informed Consent, Beneficence, Non-maleficence

References

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[15]	Farrelly, M (2004). Ethics in research with people with disabilities. Annual PSI Conference, November, 2004. Retrieved from www.psihq.ie/DOCUMENTS/ERLD.PDF on May 27, 2011.
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Diane Nelson Bryen. (2016). Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges. Humanities and Social Sciences, 4(2-1), 53-59. https://doi.org/10.11648/j.hss.s.2016040201.18

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Diane Nelson Bryen. Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges. Humanit. Soc. Sci. 2016, 4(2-1), 53-59. doi: 10.11648/j.hss.s.2016040201.18

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AMA Style

Diane Nelson Bryen. Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges. Humanit Soc Sci. 2016;4(2-1):53-59. doi: 10.11648/j.hss.s.2016040201.18

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@article{10.11648/j.hss.s.2016040201.18,
  author = {Diane Nelson Bryen},
  title = {Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges},
  journal = {Humanities and Social Sciences},
  volume = {4},
  number = {2-1},
  pages = {53-59},
  doi = {10.11648/j.hss.s.2016040201.18},
  url = {https://doi.org/10.11648/j.hss.s.2016040201.18},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.hss.s.2016040201.18},
  abstract = {This paper traces the history of conducting research involving people with disabilities and raises serious questions about the ethics of conducting research. Ethical concerns include treatment of vulnerable populations, lack of informed consent, and benefit versus undue hardship when using people with disabilities as research participants. New technological advances, such as discussions on social media, present some new ethical concerns. Two case studies are presented that illustrate new ethical challenges. Guidelines are proposed that address the right to privacy, anonymity and confidentiality.},
 year = {2016}
}

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TY  - JOUR
T1  - Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges
AU  - Diane Nelson Bryen
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Author Information

Diane Nelson Bryen

Centre for Augmentative and Alternative Communication, University of Pretoria, Faculty of Humanities, Pretoria, South Africa

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Diane Nelson Bryen. (2016). Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges. Humanities and Social Sciences, 4(2-1), 53-59. https://doi.org/10.11648/j.hss.s.2016040201.18

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ACS Style

Diane Nelson Bryen. Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges. Humanit. Soc. Sci. 2016, 4(2-1), 53-59. doi: 10.11648/j.hss.s.2016040201.18

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AMA Style

Diane Nelson Bryen. Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges. Humanit Soc Sci. 2016;4(2-1):53-59. doi: 10.11648/j.hss.s.2016040201.18

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@article{10.11648/j.hss.s.2016040201.18,
  author = {Diane Nelson Bryen},
  title = {Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges},
  journal = {Humanities and Social Sciences},
  volume = {4},
  number = {2-1},
  pages = {53-59},
  doi = {10.11648/j.hss.s.2016040201.18},
  url = {https://doi.org/10.11648/j.hss.s.2016040201.18},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.hss.s.2016040201.18},
  abstract = {This paper traces the history of conducting research involving people with disabilities and raises serious questions about the ethics of conducting research. Ethical concerns include treatment of vulnerable populations, lack of informed consent, and benefit versus undue hardship when using people with disabilities as research participants. New technological advances, such as discussions on social media, present some new ethical concerns. Two case studies are presented that illustrate new ethical challenges. Guidelines are proposed that address the right to privacy, anonymity and confidentiality.},
 year = {2016}
}

Copy | Download

TY  - JOUR
T1  - Ethical Issues in Conducting Research Involving Persons with Disability: A View from the Past and Some New Challenges
AU  - Diane Nelson Bryen
Y1  - 2016/05/13
PY  - 2016
N1  - https://doi.org/10.11648/j.hss.s.2016040201.18
DO  - 10.11648/j.hss.s.2016040201.18
T2  - Humanities and Social Sciences
JF  - Humanities and Social Sciences
JO  - Humanities and Social Sciences
SP  - 53
EP  - 59
PB  - Science Publishing Group
SN  - 2330-8184
UR  - https://doi.org/10.11648/j.hss.s.2016040201.18
AB  - This paper traces the history of conducting research involving people with disabilities and raises serious questions about the ethics of conducting research. Ethical concerns include treatment of vulnerable populations, lack of informed consent, and benefit versus undue hardship when using people with disabilities as research participants. New technological advances, such as discussions on social media, present some new ethical concerns. Two case studies are presented that illustrate new ethical challenges. Guidelines are proposed that address the right to privacy, anonymity and confidentiality.
VL  - 4
IS  - 2-1
ER  -

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